So...a while back I was asked by a researcher what I think other people should know about what it's like to raise a child diagnosed with autism. This is what I came up with...I had to make it short because my space was limited!
Other people should know that even though my child has autism, he is not a burden that has ruined my life, he is still my beautiful baby boy whom I love and enjoy every single day. So please don't apologize!
Please recognize and internalize that every aspect of my son is not directly attributable to his autism, he is also a five year old little boy that has likes and dislikes similar to other children.
Other parents should know that our son learns in a different manner than typical developing children and therefore requires a different approach as well as more one on one instruction.
He is not spoiled or undisciplined. If he acts out or has a tantrum, he's not doing it on purpose - it is because he is over stimulated or unable to convey his frustration due to communication issues. So please be patient and understanding in a school setting – we do everything possible to keep our son from interfering in other children's education but feel he has the right to participate.
People should know that we have had to work twice as hard for every skill that our son has and that we are dedicated to helping him grow up to be a positive contributing member of society.
I would hope that people would also recognize that although we are optimistic, this is also the hardest thing we've ever done. We are still devastated that this had to happen to our little boy and there is always a level of grief resting just below the surface. Although we are pleased to hear of developmental milestones in other's children, it is also a blow for we can't help but compare it to our own experience.
Please share, but also, please don't harp on it!
Last, I would like other people to know that autism IS a treatable condition.
Research has found that there is a mind-gut connection in ASD. Lab test results have confirmed that our son's digestive system has been damaged. We are in the process of repairing this damage, but it is a lengthy process involving a strict diet and supplement regimen.
We are not crazy. Like all parents, we are just doing everything possible to help our son be as healthy and happy as possible.
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